Sorry we have not recently updated the blog... wanted to provide an update.
Chris is back from Houston and doing well. They are still adjusting medications and getting that all right. He had a reaction to some of the medication so that is being addressed.
Chris has also entered the world of fighting the insurance company on claims being submitted. So far, so good. The only thing being lost at this point is time spent on the phone and paperwork being processed through.
He is feeling ok, some days are better than others. His pain is being managed, but he isn't working at this point. Some of his other treatments are still being worked on for approval, so March should give a good indicator of how his treatment is going once everything is under way.
Crest Honda held the raffle on Friday and had a winner for the guitar autographed by Wynonna! Congrats to the winner. They will hold a new raffle starting tomorrow, March 1st. More details on that when available.
If you have an opportunity to do so, please contribute a small donation to the medical fund if possible. For now, Chris will have a follow up and travel back to Houston in the April/May timeframe.
Sunday, February 28, 2010
Thursday, February 11, 2010
Back home
Chris and mom flew back home today, so just wanted to provide an update to everyone. We'll post more details of the trip as soon as possible!
Friday, February 5, 2010
Week 1, Day 5 Update - PLEASE READ.
An update from our mom in Houston:
"Just letting you know what is going on. Chris has 2 genes that have gone radical. They are using gene therapy for both but he is going to have to go back on the chemo pill he was on, which is a low dose. He has to have a brain MRI tomorrow to make sure he can take the 2nd gene therapy with no problems. He got a big dose of Benedryl with the first infusion today, as they did not want an allergic reaction. He is zonked from it right now. They charged him $3,777.20 for the first infusion today."
That being said, the reason for our fundraising efforts have been due to the out of pocket expenses because of his insurance. After deductables, he pays these amounts for different tests and treatments, then, waits 45 days to get reimbursed. While that happens, other expenses are incurring, and that is the problem.
While Chris does have great support and a lot of donations already, the need still exists. Please consider donating today to help Chris keep his care continuious.
Chris has 2 methods for accepting donations:
PayPal: chrisearlesinfo@gmail.com
Our mom continues...
"He has paid out the infusion amount plus about $900.00 yesterday for the PET scan, so he is getting nervous because the money is now flying out of the medical account. His out of network deductible is $1,400.00 with an out of pocket maximum of $5,000.00... I do not have any idea what the MRI will cost tomorrow out of pocket until we get there.
He is in big trouble with the cancer. It is more advanced in his liver than we thought. And now, there are more lymph nodes involved. We did find out that the pain in his abdomen is from fluid that has built up in his abdominal wall. They have detected cancer cells in the fluid. The doctor prescribesd a diuretic that only costs $2.25 to get rid of the fluid. She wants to hit this hard and fast and told him so. Tell everyone to pray hard and donate if at all possible, we need to keep his treatment funded!
Love ya,
Mom"
"Just letting you know what is going on. Chris has 2 genes that have gone radical. They are using gene therapy for both but he is going to have to go back on the chemo pill he was on, which is a low dose. He has to have a brain MRI tomorrow to make sure he can take the 2nd gene therapy with no problems. He got a big dose of Benedryl with the first infusion today, as they did not want an allergic reaction. He is zonked from it right now. They charged him $3,777.20 for the first infusion today."
That being said, the reason for our fundraising efforts have been due to the out of pocket expenses because of his insurance. After deductables, he pays these amounts for different tests and treatments, then, waits 45 days to get reimbursed. While that happens, other expenses are incurring, and that is the problem.
While Chris does have great support and a lot of donations already, the need still exists. Please consider donating today to help Chris keep his care continuious.
Chris has 2 methods for accepting donations:
PayPal: chrisearlesinfo@gmail.com
Our mom continues...
"He has paid out the infusion amount plus about $900.00 yesterday for the PET scan, so he is getting nervous because the money is now flying out of the medical account. His out of network deductible is $1,400.00 with an out of pocket maximum of $5,000.00... I do not have any idea what the MRI will cost tomorrow out of pocket until we get there.
He is in big trouble with the cancer. It is more advanced in his liver than we thought. And now, there are more lymph nodes involved. We did find out that the pain in his abdomen is from fluid that has built up in his abdominal wall. They have detected cancer cells in the fluid. The doctor prescribesd a diuretic that only costs $2.25 to get rid of the fluid. She wants to hit this hard and fast and told him so. Tell everyone to pray hard and donate if at all possible, we need to keep his treatment funded!
Love ya,
Mom"
Tuesday, February 2, 2010
Reminder: Raffle tickets still on sale!
Just a reminder to stop by Crest Honda and purchase a raffle ticket for $10 for your chance to win a guitar autographed by Wynonna! Tickets available until sold out. Proceeds go to funding medical treatment for Chris!
Crest Honda
2215 Rosa L Parks Boulevard
Nashville, TN 37228
Thanks for your support! It's why Chris is in Houston for the next few weeks - without the support, the trip wouldn't have been possible at this time, so thank you all again!
Crest Honda
2215 Rosa L Parks Boulevard
Nashville, TN 37228
Thanks for your support! It's why Chris is in Houston for the next few weeks - without the support, the trip wouldn't have been possible at this time, so thank you all again!
Week 1, Day 2
Sorry for no update since the weekend. Chris has been at the clinic now for 2 days and spent time consulting with different doctors about treatment. Positive information being shared as of day 2 according to our mom... some changes in diet are coming as his calcium levels are pretty high and need to be controlled. Also, it seems as though the Chemo treatments actually may have been WAY high (original understanding was he was receiving low doses) and this may have caused some issues with his negative reactions to the different Chemo treatments.
He will be back at the clinic tomorrow afternoon for a follow up and to get results on some of the genetic testing they are conducting. Other drugs are already prescribed.
The overall feeling is that Chris is finally in the right place. While in Houston, he will be at the clinic every day for testing and consultation.
He will be back at the clinic tomorrow afternoon for a follow up and to get results on some of the genetic testing they are conducting. Other drugs are already prescribed.
The overall feeling is that Chris is finally in the right place. While in Houston, he will be at the clinic every day for testing and consultation.
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